At the American Indian Cancer Foundation (AICAF), our Prevention & Policy Program is dedicated to engaging, educating, and empowering American Indian and Alaska Native (Al/AN) communities to adopt healthy lifestyle practices that can significantly reduce cancer risks in Indian Country. We work closely with tribes and tribal organizations to support the implementation of resolutions and policies that promote these practices.
AICAF utilizes culturally appropriate resources to drive Policy, Systems, and Environmental (PSE) change within communities, focusing on key areas such as tobacco cessation, healthy eating, and physical activity.
Our team provides training and technical assistance to build capacity on many topics including: Tribal Policy, Systems, Environmental (PSE) Change, Strategies for Identifying Health Priorities, Community Engagement, Coalition Building, Action Planning, and Tribal Policy Development and Assistance.
Policy, Systems, and Environmental (PSE) change is a framework for creating positive, sustainable community health outcomes and supports culturally-specific health priorities. PSE change relates to a universal Indigenous worldview by examining how different policies, systems and environments contribute to vibrant Native communities throughout history.
What impacts our health?
Prevention of many cancers is achievable through the practice of healthy lifestyle choices —avoiding commercial tobacco, drinking alcohol in moderation or not at all, maintaining a healthy body weight and exercising regularly. However, behavioral change is not the only factor to consider on this healing journey. The places we live can be determinants of how we learn, work, exercise, and eat; influences within our environments are what determine if a person, family or community is healthy. Policy, Systems, and Environmental (PSE) change strategies present solutions to achieve positive health outcomes in Indian Country.
Culture is prevention: we have the solutions to eliminate cancer
AICAF provides technical assistance and support to communities and Native organizations in developing PSE change to promote health equity, cancer prevention, and healthy norms in Indian Country. Our team focuses on tobacco, healthy eating, and physical activity, working in partnership with Native communities and organizations to engage, empower, and educate communities for action and innovation.
The framework we utilize is based on a Health in All Policies approach (HiAP). Prevention & Policy staff have been authentically engaging several tribes and organizations to identify community readiness and action for tribal PSE initiatives through all phases from development, enactment, and into governance and enforcement.
For more information on PSE change or to get involved, contact [email protected].
The foods we consume play a crucial role in our overall health. AICAF’s Healthy Native Foods initiatives concentrate on utilizing traditional ways of eating to improve health outcomes within our communities. By reclaiming our relationship with minimally processed, nutrient-dense, and culturally celebrated foods, we aim to eliminate cancer risks across our communities.
Through initiatives like Healthy Native Foods, we highlight the importance of traditional foods, healthy diets, and cultural practices for overall health and wellness. Our work includes identifying food advocates, creating networks, and fostering knowledge sharing to advance this critical mission in Indian Country.
For more information about technical assistance or to get involved in our program, please contact [email protected].
The Health Equity team leads program strategies that inform, support, and strengthen tribal partners through the development of health equity programs and services to improve cancer outcomes across Indigenous communities.
AICAF’s work is guided by our cultures and teachings, which include our sacred traditional tobacco, which is embedded into all of our programs and projects. We acknowledge and honor that traditional tobacco is a gift from Creator, and many communities use it in a traditional way.
Mainstream evidence-based commercial tobacco control interventions often do not produce the same results for Indigenous people. Comprehensive strategies rooted in knowledge of customs, cultural traditions, and ways of knowing are proving to be promising practices for elevating the health of American Indian people. AICAF works with advocates across Indian Country to restore traditional tobacco practices, to reduce commercial tobacco abuse like cigarette smoking, and to prevent secondhand smoke exposure.
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Breast Cancer
The first thing Elnora Thompson thought when she was diagnosed with breast cancer was, “Let’s get in there and get it out.” Elnora is a member of the of the Eastern Band of Cherokee Indians and resides in Cherokee, North Carolina. Health screenings, including mammograms and paps, were always stressed by Elnora’s mother. There was a history of breast cancer in her family, two of her mother’s sisters had been diagnosed.
Elnora knew her breast cancer risk and made healthy changes in her life: she quit smoking in 2000, started running, and always got an annual mammogram.
In 2011, at the age of 64, Elnora had a suspicious mammogram that required follow-up with a biopsy. The results were negative but required another mammogram in 6 months; this time, the next mammogram and biopsy came back cancerous. She was diagnosed with Invasive Duct Carcinoma Stage 1. “I didn’t have time for breast cancer”, Elnora declared. Although she was optimistic about her diagnosis, she still didn’t tell anyone. The IHS Women’s Wellness Program reached out to Elnora and encouraged her to tell her son. In doing so, he became her biggest support system. The breast cancer diagnosis led to a PET scan, which found 2 other primary cancer sites in her thyroid and lungs, that showed no symptoms. Elnora endured three different cancer surgeries in one year.
Elnora’s running club, Cherokee Runners, offered support and walked with Elnora in her first Relay for Life. The Cherokee Cancer Support Group was also a strong support system that reached out to Elnora and offered financial support during treatment and emotional support that contributed to her healing. Today, Elnora is cancer-free and volunteers with the Cherokee Cancer Support Group. The advice she shares with other American Indian and Alaskan Native Women is, “Get your screenings, my cancer was found early because I did screenings on time. I am also thankful for breast cancer because it helped find other cancers in my body.”
Thank you, Elnora Thompson, for sharing your breast cancer survivor story to encourage others to get screened.
Cervical Cancer
Joni Buffalohead (Bdewakanton Dakota of the Sisseton-Wahpeton Oyate) has been getting regular Pap tests since she was a teenager. Following her second pregnancy at 30 years old, she received an abnormal Pap result. She returned to the doctor for follow-up care after giving birth to twin boys where she received the devastating news that she would need to have a full hysterectomy.
Joni shared with us a lot of the thoughts and feelings she had 20 years ago when she had her surgery.
Choosing to have her uterus removed was a difficult decision, especially since Joni and her husband had not yet decided if they were finished having children. Although the procedure would prevent future pregnancies, Joni elected to have the hysterectomy since she had already birthed a daughter and twin boys. Being unable to have children brought up a lot of difficult emotions for her. In the years since the procedure, Joni has found out that she may have had other options at the time.
Joni encourages other women to develop a strong relationship with their provider and have an active voice in their cervical cancer treatments. One regret that she has is that she did not educate herself more about cervical cancer treatments. Now that she has three adult children, she wishes that she would have had the opportunity to have more kids.
Joni’s diagnosis occurred during a time where not much was known about the links between HPV and cervical cancer. At first, Joni questioned who had first contracted HPV and spread it to whom. Questions of infidelity crept into her mind until she learned that HPV is extremely common in men and women and that HPV incidence might have occurred years prior to her marriage. In fact, 80-90% of people come into contact with HPV at some point in their life. Instead of unfairly blaming her husband, she made steps to protect their future generations from HPV-related cancers. She had honest conversations with her children about the importance of caring for your body: “I’ve been open with my children since early on. I taught my daughter to go to the OB-GYN regularly and my sons and daughter made the choice to get the HPV vaccine themselves.”
At the start of her cervical cancer journey, Joni made a promise to herself: “if I survive this, I will lead a more courageous life.” Today, she sings lead in a Native blues band Bluedog. Bluedog’s music gives voice to the struggles of Native people and celebrates the resilience of our people. With the knowledge that Native women experience higher rates of cervical cancer than white women, Joni now uses her voice to advocate for cervical cancer education and regular screening. She urges other women to get screened regularly and to use your voice for those who have gone through a cervical cancer journey: “if you go through it, please be an advocate. With your support, another woman might not have to.”
Thank you, Joni Buffalohead for sharing your story.
Cervical Cancer
Lugene Flores (Oglala Lakota) is a fierce advocate for Pap tests after ignoring results had a huge impact on her life. After the birth of her son at 24 years old, she received an abnormal Pap test result at a routine care appointment. Instead of following up with her doctor, she switched from clinic to clinic for ten years, scared of what the abnormal result might mean. She didn’t face it until frequent heavy, painful periods started in her mid-30s.
With steady encouragement and support from her husband, Lugene made the decision to address the decade long history of abnormal Pap results. She went to the doctor for a biopsy and found stage 2 cervical cancer in her uterus. Lugene initially went in for surgery to remove her cervix and uterus, but they found that cancer had rapidly spread. They needed to remove her ovaries and fallopian tubes as well. Today, Lugene is healthy and works as a patient advocate, educating young Native women on the importance of Pap tests.
“I was just too scared,” Lugene recalls, “I never thought there was a possibility that I could have cancer. I thought maybe it could have been an STD and I was too embarrassed to find out if that’s why it was abnormal.”
Lugene is sharing her story with the American Indian Cancer Foundation to reach other women out there who have had abnormal Pap results and are afraid. She says that for women who are scared, it’s important to talk about the possibilities with their healthcare provider. Otherwise, circumstances can get worse. She cautions: “Just because you ignore an abnormal test result, it doesn’t mean it’s not there. I ignored it for 11 years and it was still there – getting worse. It’s best to catch it early. The earlier you catch any disease, the better you are to fight it.”
Lugene feels she wouldn’t have been afraid to follow up on her abnormal result if she had had the right education beforehand. She advocates for stronger cervical cancer screening education for women. “It’s important for these young ladies to know how essential Pap tests are. It can save their lives. If they get an abnormal result, they need to have the education in place, in advance.”
For women to be more knowledgeable about their Pap test experience, she advises, “They need to connect with their healthcare provider and ask what’s next, what does that mean, and what is that test? You will find out that the test result is really nothing scary by asking about it. Ask your doctor, ‘How long does it take me to get the results of this test? What does abnormal mean? What are some reasonings that paps come back abnormal?’” Lugene encourages women to be their own advocate if the doctor is not being proactive or supportive enough.
Lugene has seen how the cancer burden has affected American Indians and urges men and women of all ages to prioritize screening. “In our Native communities, cancer runs pretty high. I watched a good friend’s mother die from cancer. I watched her waste away and I don’t want to see people die like that. I hope our people start listening and stop being scared of the unknown. We have to remember that we have to be here for our younger generations.”
Thank you, Lugene Flores for sharing your story.